That is the question I had been asked ever since Ethen came home. Well… I will always say “yes” – he is ok.
He looks perfectly normal and behaves just like a new born baby; fussing for milk when he is hungry, crying when he wants his diapers changed and whining when he wants a cuddle.
When Ethen was born, his primary diagnoses are one A4 page long. He had almost every imaginable problems a preemie could have. Thank God when he was discharged, the remaining existing conditions went down to 1/3 A4 page. However, he is still battling with a few issues – e.g, a small hole in the heart and grade 1 IVH. – just to name a few. He is also on vitamins, iron and protein on every other feeds.
Ethen also has a long list of follow up appointments with KKH doctors – from the dietician to the ear doctor to the eye doctor to the physiotherapist to the heart doctor to the neonatologist – the list goes on…. Basically he will be officially“discharged” only when he is 8 years old according to KKH’s policy for preemies with VLBW (very low birth weight).
So – is he ok? Yes – ok to be home with us. He just need extra TLC and time to grow out of his remaining issues.